Wheel of Misfortune

Last May, Rita and I had our first brush with danger.  

My friend Helen and I had booked  an organized tour in both Istanbul and Cappadocia, eager to take on the hot-air balloon flight the latter is known for. Steeped with cavernous hilltops and cone-shaped rock formations they call “fairy chimneys,” Cappadocia is a landscape to behold. Stacked with ancient cave dwellings and towering boulders, this Anatolian region entwines both human history and a lust for cultural authenticity. It’s no wonder they use the land as a platform for the countless balloon voyages, all gliding in unison like jeweled doves. 

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We experienced 21st-century cave-living in a cozy cave hotel in the town of Goreme. It was the first on a long, winding hill that led to a parade of competing cave hotels that might have boasted better views, but like ours, promised reclusiveness over a a golden hued sunset. A humble city, Goreme caters well to the flurry of tourists, with their strap-on cameras and straw hats, with rows of market stands the size of a walk-in closet. Overly eager shopkeepers loiter outside determined to get you to choose from their array of local products, from Turkish doner kebabs to ceramic pottery and homeware, and of course, the ever elusive deal of a lifetime: the hot air balloon ride. Yes, for just a few hundred euros, you too can book your chance to float over the Cappadocian sunrise and walk away with a selfie even your neighbor’s dog would be envious of (selfie stick not included). balloonsHelen and I had booked our adventure several months ago through a private company, only to discover just days before our trip that the flight hadn’t been reserved at all and we had been tucked away onto a waiting list the length of a football field. There we were, left to dangle, like nerdy teens waiting in line for Star Wars tickets… checking again and again for the email confirmation that never came. 

Every morning at 5am we’d hear the clumsy footing and chit chat of our neighboring guests, all clamoring to the bus that would lead them to the kaleidoscope of colors that awaited them up above. True to my superstitious Latin nature, the first morning I woke up thinking we were being visited by noisy poltergeists who had turned in their heavy chains for intermittent cackling. Helen eventually rolled over to tell me that the ghosts were very much alive and heading to the Promised Land…well, sky. Hours later, the echoes would return, a powerful new lilt in their voices, their footsteps a light patter, now waltzing to a new serenade. They were nauseatingly happy. I yanked the plush pillows over my head while in the fetal position, in a desperate attempt to stifle the noise…and pangs of jealousy. And yet I still checked my phone soon after for the message or call promising we’d also be up at the crack of dawn, sleepy-eyed, stale breath and all. Still nothing.

On our second day in Cappadocia we arrived in Monks Valley, an area b113360b-13c1-4f79-b60c-f30349254b99noted for its fairy chimneys and unusual stretch of lunar landscape. Our tour group consisted of about 10 people from all corners of the globe: Australia, Colombia, Mexico, and Mauritius. They were a friendly bunch, intent on discovering this Turkish haven. 

As we left the bus behind, I noticed Rita was moving rather stubbornly. Our foreheads already slick from the morning sun, Helen and I were quickly working up a heavy sweat trudging up the rocky pathway that led to the main entrance. We’d pause abruptly every couple of meters, with my body jerking forward and my neck jutting out like a hungry little sea turtle. With confusion drawn across our faces, we stopped and looked down at Rita’s wheels and both our mouths gaped open. The left caster (front) wheel was barely attached to its fork (where the wheel is fitted) and was, in fact, coming apart. For the first time ever, I had a glimpse of what it feels like to almost pass out from the sheer shock of a moment. My head spun like the inside of a blender and my clammy fingers cupped my forehead like moist mop threads. My underarms sweated through my sky-blue dress, as beads of panic rolled over my cat-eye sunglasses. I felt like a contestant on Survivor, out in the middle of nowhere with no celebrity host or camera crew to lean on in case of emergency.  Here we were, chair-wrecked, my studio audience a blur of sweaty tourists. “Oh shit,” was all I could muster. “We might need to have a little talk later, Rita,” I thought grudgingly.  

With our tour group now far ahead of us, we quickly went into MacGyver mode, making a general inspection of what we had to work with but also remembering we were nowhere near our hotel, or town for that matter. Eventually, I got up and sat on a ledge so Helen could lift up Rita’s lower body and place her backseat on the ashen ground. She rotated the right wheel, relieved to see it wasn’t suffering a similar fate as its lopsided twin. Passersby began to linger and I could feel my cheeks turning as bright as Rita’s red frame. “Geez, Rita, you sure know how to make an entrance, don’t you?”

Then it hit me. Just two days ago, airport security had questioned me over a small Velcro-lined black pouch that was hidden underneath Rita’s seat. When asked to reveal the contents of the mysterious compartment, they exchanged quizzical glances but reluctantly let me go through. The items were sure to be there still, inside Rita’s carefully concealed “lady purse,” and I thanked the wheelchair gods. We might get through this mechanical snafu after all! In that moment that pouch was my Narnian closet, just brimming with powerful and all-knowing treasures. 

I reached down and there they thankfully were: a miniature collection of hand tools lined up flat like make-up brushes or a manicure set – Rita’s personal beauty kit. Almost simultaneously, a local man approached us, noticing something had gone wrong. He had a slight frame and wore a white shirt that seemed weathered from the harsh sun. We didn’t speak each other’s language, but I gathered he had seen enough. Rita still lay on her back like a woman in labor, her dusty footplates spread apart as if on stirrups. With a shy but determined look in his eyes, the man took the plastic-wrapped tool kit and crouched over the caster wheel, rotating it just as Helen had done. He was the master of this operating room with mini screwdrivers and wrenches being hurriedly passed from hand to palm and back.   

98fbbe42-b723-481c-846d-6008a62cd6a4And then just like that, Rita’s wheel was magically back in its place. My local hero (whose name and photo I sadly forgot to ask for) smiled with pride – the effusive praise making him cower just a little. He walked away refusing payment, and we were left to continue our journey, Rita now back to her steady self over the cobblestone ridges. Later, I looked out over the mountain tops, collecting my breath and sanity, knowing that it could have been much worse than it was. I searched for him in the crowds – this kind man that had unknowingly saved us a whole lot of grief – and for the 50th time, I thanked him again in my mind. 

We never made it on that hot-air balloon. I’d like to think it just wasn’t meant to be this time. But I walked away with so much more than the dizzying beauty of a perfect view. Once again, I was reminded of how much good there is in humanity and in the little things. People, in their essence, are happiest when they can give. Over the years, I’ve had to rely on the kindness of strangers, and that kindness – that willingness to help out our fellow man no matter the odd circumstance – has kept me afloat….and always surprised. Watching my friend and a stranger hunched over a dirty broken wheel might have been the more humbling view I needed that day. And while I didn’t reap the glory of a selfie in the skies, my memory tells me I was still given more than I bargained for. 

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At Rita’s very special request, she’ll be getting a tune up before the next major trip. All in all, I think we both win. 

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16

Last October, I celebrated the 16th anniversary of my accident.

I think about these years since the accident and the long journey behind me: how that naive but curious 21-year-old managed to get by when so often the odds seemed against her. We certainly wouldn’t be where we are now without a lifetime of moments – little nuggets placed along the way for the sole purpose of making sure we know better next time. So what nuggets have I collected along the way? Here’s what I’ve learned so far….

These are in no chronological (or logical) order.

  1. Life is happening for us, not to us. I think odds are meant to play us, and misshape our reality just enough to make us question what type of players we even want to be.
  2. Coldplay will get you through any bad moment. A Rush of Blood to the Head was my audio chocolate on days when the world seemed a little too heavy-handed. It helps to have a lean, sexy Chris Martin at the helm.
  3. Get outside of your comfort zone! You’ll know you’re there if you feel absolutely terrified.
  4. WARNING: Wheelchairs will bite if you don’t treat them with care. Never place your hands underneath them while attempting to open the armrest. They will snap on you quicker than a Latina with pointy fingernails.
  5. Travel. Nothing makes you a better, more empathetic storyteller than the experience of travel.
  6. When in doubt, say yes. I often surprise myself when I do that. I’m still waiting for someone to ask whether I want to time-share an alpaca.
  7. Frida Kahlo is the best Halloween costume ever. That is all.
  8. Nurses are the real heroes. They see everything and still show up to work the next day.
  9. Laughter really does help. I can’t tell you how many times I’ve laughed through an awkward situation and felt better. You have to laugh when your orthopedic technician is staring at your crotch as he measure you for a new prosthetic leg.
  10. Exercise, stretch, move! A simple exercise routine will change your life.
  11. You know that saying, “an apple a day…”? I substitute that with an avocado. Yum.
  12. You know that other saying, “dance like no one is watching”? Scratch that. Dance like everyone is watching and you’re auditioning for Dancing with the Stars. Dance like you’re a Fly Girl on In Living Color and JLo is shaking her badonkadonk right next to you.
  13. Smile. Everywhere. Every time. Repeat as needed.
  14. Make time for yourself. It’s the one person you’re stuck with for the rest of your life, so you better like who you are.
  15. When you want to feel a little fancy, drink juice out of a wine glass. It works and you feel like less of a lush. Trust me.
  16. If you’re ever in an emergency room and asked to rate your pain from 1-10, go with 8. That’ll get you morphine. Again, trust me.

 

…and then I drowned.

Since I can remember, my relationship with water has been a precarious one, rooted in fear, confusion, and overall apathy. One hot summer day in Colombia, when I was 7, my family and I were visiting the community pool. While at the kiddie pool, a young boy playfully, but violently, shoved my head under the water. As I thrashed and throttled like a mermaid on steroids, he laughed, convinced I was having a good time. When the little menace finally let me up for air, I was manically coughing, my eyes full of tears and insult. With not a family member in sight, I remember staggering back to my mother as she casually sat by the adult pool, clearly oblivious to the trauma I had just undergone. Vulnerable and exposed, it was probably then when I began to harbor a phobia of water. Suddenly the summer trips to the pools and rivers seemed like a punishment and were met with drudgery. It became something I needed to brave through for my cousins and sister, who now seemed so much more courageous than I could ever be. And so my childhood years passed before my very eyes, with this fear of water never relenting.

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Fast forward to many (yes, many) years later, and I found myself on the shores of Calabria, in a picturesque beach town called Tropea. At the age of 37, and with the same fears and trepidations of water still plaguing my psyche, I had one more fear to conquer. This trip would be the first time I took off my prosthetics and wore a bathing suit in public; the first time I would sit on a beach chair, the first time I would tan in the company of others, the first time I would put my body out there for the world to see. Needless to say, this was big.

After a hearty Calabrese breakfast, my friend and I made our way to the beach, a 10-minute descent from the hotel. With the 33-degree sun beating down on our backs, we got to the chair lift and were greeted by two very bronzed and fit lifeguards, who escorted us down to the boardwalk. They were effusive in their typically charming,
Southern Italian way, and clearly had been under the sun for most of their lives. I started to wonder if my tan could ever be as good as theirs, but all thoughts of vanity and image diminished the closer we got to the beach and our designated hotel spot.

Now, their glistening hairy chests were the least of my concerns, with my nerves rattling in the pit of my stomach like a bird in a cage. From the boardwalk I stood up, left the wheelchair behind, and held on to my friend’s arm as we steadily made our way over the sand and to the comfortable orange beach chairs. Our hotel neighbors looked up from their sunglasses and nodded, before returning to their regimen of self-indulgence. I sat down and looked out into the sea, the cacophony of waves both unsettling and alluring. Everyone around me seemed immersed in their own beach-time ritual; children collectively splashed in the water, women flipped over on their beach beds like golden pancakes, and men sleepily read their papers. Beach vendors paraded the shores with brightly colored tunics and necklaces, lugged around on portable racks. There was a stillness to it all that was both comforting and yet grating in a way I could only understand.

There I sat, my jaws clenched and shoulders caved in, unsure of where I fit in to all of this. I couldn’t do any of the things everyone else was doing. I couldn’t swim, and I could barely walk in the sand, let alone run or play like everyone else. The last 15 years came crashing back almost as roughly as the waves in front of me. How could I expose myself this way? Could I remove my prosthetics in front of everyone and not feel like a museum piece on display? Over the years, I have grown used to the stares and the occasional pointing, but this was a level of vulnerability and rawness that shook me to my core.

….and then I drowned. Not in the crystalline waters that surrounded me, but in my own self-pity. My fears took hold and morphed into bitterness and sorrow, and all my heart could carry in that moment were the fears of my past. What was meant to be a pleasant summer getaway turned into the dreaded childhood trips to the pools and rivers of so long ago. I sat there in my long tunic, with my prosthetics still attached to what was left of my limbs. My friend, Jessica, patiently waited for a signal to help, as I sat there in complete silence, squinting at the memories that still flooded back.

As she ventured into the water on her own, I sat back and dipped my hand into the grainy sand, gently poking and patting the mounds that formed. calabria 5 Occasionally a small stone or pebble buried in the depths would surface and be stored away in my tote bag like newfound treasure. A cold, misshapen stone, buried by the umbrella pole, made its way through my fingers. Like an archeologist with a fossil brush, I curiously wiped it clean and noticed it was not a beach stone at all, but the remnant of a mosaic tile; flat and maroon colored with beige wrapped around its edges. As my fingers studied its proportions and texture, I realized this tile didn’t really belong there, and yet somehow there it was, staking its claim to the sea, at one with its environment. And then it hit me: I was also different. I didn’t necessarily belong, but I too was there to stake my claim, to be a part of the world unraveling before me. The only person that I was punishing with my self-pity was myself. I was the only victim in my drowning, and I could either let this weight sink me, or be free of it.

I turned to my prosthetics, ready to let them go. I clicked the arm’s release button, pulling it away, and then unstrapped the Velcro strips from my waist, opening the upper half of my prosthetic leg that binds around me. Jessica took her cue, gently wrapping the prosthetics in an oversized towel, placing them on the sand. It was a sight to be seen: a foam leg with a pastel blue converse sneaker peeking out of a towel, and dainty silicone fingers protruding like something out of a horror movie. A little bit of ketchup in the wrong places and people would definitely have something to talk about!

As expected, the tension was palpable. Heads turned and eyes darted in my direction. Yet somehow and somewhere in the depths of me, I realized that in letting myself be completely vulnerable I now had nothing to protect myself from. I was free to be me, to be seen. Regardless of what was missing, I was whole. I knew I had just one more thing to do.

Jessica dragged an inflatable raft over to my beach bed and I instantly plopped myself over it, snuggling in to its warm rubbery embrace. The raft was hauled to the water, and without hesitation I jumped off and sat at the tip of the shore, letting the waves engulf me. The cool water was a much-needed reprieve, as my skin was drizzled with the cool ocean spray. We both sat there, inching our way closer and closer to the water’s depths until I decided it was as far as I could go. In that moment it’s as much as I could do, and I was ok with that. We sat there, feeling the sun on our moist hair, and smiled. We had come a long way.

Calabria was a game changer for me in more ways than one. It opened a door I had long ago closed, and now I don’t think I ever want to close it again. Feeling that vulnerable helped me realize my fear was a symptom of a deeper reality: the only outcome to fear is continuous loss, and the only ones that stand to lose are the ones that are consumed by it. I think of how liberating we must all feel when we choose to expose ourselves for who we are and not for how we think others want to see us. In the end, each and every one of us carries a deep-rooted fear, an insecurity, in a place we wish we could keep tucked away.

But we get so caught up in belonging and appeasing the masses that we forget the value calabria 7of standing out. We forget that our uniqueness, while personal in nature, is a universal component to everyday life and living; and accepting that is, in essence, what makes us belong. When we embrace the things we fear most, we take away their power and relinquish their control over us. They become an obscurity – a relic of the past that occasionally washes ashore but is eventually lured away by the current once again. Like that mosaic tile, we find that strength naturally holds a place within us, a place that embodies truth despite fate’s disparities. While I may not have gone deep this time, I know for certain that my next summer getaway will be different. I know for certain that despite my limitations, what buoys me is having a purpose – an experience to call my own – and those fears, while crushing and breaking at times, will no longer have a permanent place.

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A Generous Day

It’s always been a personal goal of mine to try something new on my birthday; whether it be taking a trip or trying a new experience. This year, I celebrated my birthday with a trip to Monte Generoso.  Having been contacted by their marketing team a few months ago, I was more than eager to visit this natural wonder, steeped not only in cultural history (125 years’ worth), but also home to one of the most breath-taking panoramic views you’ll see in Ticino.

Monte Generoso certainly lives up to its name, and in more ways than I could have imagined. This majestic mountain is  located on the border between Switzerland and Italy, spanning between Lake Lugano and Lake Como. A 30-minute ride on the Monte Generoso railway will get you to the summit (at 1,704m altitude), which includes two restaurants, an art gallery, and a conference room in the recently designed Fiore di Pietra, Mario Botta’s latest architectural gem. Not far away are various other features such as a bear cave, ice pits, a science observatory, and, of course, hiking trails beyond your reach.

The train ride definitely set the tone for what would be a memorable day. When we arrived at the station in Capolago, we were instantly greeted by Viviana, their media and marketing manager, who was quick to make us feel at home while she regaled us with stories of her upbringing, family life, and adventures on Monte Generoso. A friendly railway assistant showed up almost immediately and got us ready for our journey, as a small lift was pushed out and scooted over to the front of the train. I was rolled in gently on my wheelchair, and the metal contraption was manually hoisted up to the entrance. Almost before you could say “Swiss cheese,” I was rolled inside and propped in a corner, my eager friends by my side. And so our journey began, past flora and fauna, as our ascent dazzled us with a world untouched and seemingly forgotten. It’s a world where nature prevails in its entirety, and we are but the spectators of its force. Outside this tiny electric engine that could, the contrast of the ravenous mountains engulfed us. The landscape of peaks and lush greenery lulled the senses, reminding us that we were in a place unburdened by city life. The crisp air inflamed my nostrils, and it was literally like a breath of fresh air.

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Photo by Marian Duven

When we finally arrived at the summit station, another railway assistant emerged, all smiles and pleasantries. The Fiore di Pietra (Stone Flower) towered over us, bearing the unmistakable imprint of Mario Botta. After a lengthy tour of the gallery, two restaurants, and a conference room, we were given a taste of the 360° view that Viviana so proudly boasted about on the train – and she had every reason to. Standing atop of the Fiore is a symphony of colors and beauty waiting to be absorbed. Up there, you feel an insatiable blend of longing,
joy, and reverence for all things not man-made. For those brief moments, everything seems truly possible. All my abstract hopes and dreams became a reality, and like those mountains, seemed as powerful and tangible in their making. We stood there silently, each fixated in our own solitary undertaking of this moment; each intent on creating a magical memory for ourselves. Like a penny in a wishing well, I released my inner most desires into the heavens like a kite soaring in the wind, and I smiled.

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Photo by Marian Duven

A first-class culinary delight followed the tour, as the head chef and waiters welcomed us to the Ristorante Fiore di Pietra. The hours pleasantly droned on, as the wine was plentiful and the courses were exquisite, each presented with warm, artistic decor. The feast ended on a high note, as the head pastry chef presented me with a birthday cake that was almost too beautiful to eat.

We of course dug in greedily and happily anyway. We walked (and rolled) off the scrumptious lunch, looking over the nature trails in the distance, and the science observatory, home to the largest telescope in Ticino. While I couldn’t do the bear cave or ice pits, or even take on the trails, I was still happy I could get this far in the wheelchair. With this sense of gratitude, our journey ended.

The train back to Capolago was filled with a newfound rigor and a familiarity that i-SPR6xKb-XLclearly meant we had all shared something special together. As we looked out the window a fresh breeze tousled my hair, and for a brief moment I felt the parallel of this train’s journey with my own. Over the years my life has taken me to places beyond my understanding and so often beyond my reach, but like this little engine that could, my own ascent has also proven uniquely rewarding. Like this little vintage train on its way to more promising things, my story has also given me much to be grateful for – and I truly am.

So often people talk about the inaccessibility of Switzerland, and yet they forget the efforts being made to progress and do away with this heavily imposed stigma. They forget there are places out there intent on creating a space that a disabled traveler could enjoy as well. While there are some activities I couldn’t take part in, I was still able to make it up to this natural wonder, deciding to instead enjoy what I COULD take part in.

But Monte Generoso isn’t just what it is for the beauty surrounding it: it is what it is for i-VFs94w9-XLthe people that welcome you there, cradling you with smiles and attention. It was the service from start to finish that I remember the most on this lovely trip. They say a big part of what makes an experience is the group of people you share it with. It’s most certainly true that we walk away from something just a little more touched by it, when the people that we share it with are focused on giving the best of who they are. I can’t thank my lovely friends, Viviana, the railway station crew, and the restaurant staff enough for the kindness they showed me that day.

Thank you again, Monte Generoso. You certainly lived up to your name in more ways than one.

As for my next birthday treat; well, I see hot air ballooning in the near future. 🙂

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Los Amigos de Frida

Last weekend, I went to a Frida Kahlo exhibit at MUDEC (Museo delle Culture di Milano) in Milan. I was so taken by this collection that I felt compelled to write about it immediately before any of it escaped me.

Profound, emblematic, and iconic are how one could describe Frida Kahlo’s art. To me, her work represents the many facets of life and death, from fertility to loss, from love to betrayal, from ancestral pride to alienation. Her unique blend of the macabre and hopeful never ceases to amaze me, and I doubt it ever will.

frida body strapThere was one part of the collection that stayed with me long after we walked away and drove home to the downpour in Lugano. At the very end of the exhibit was a collection of photographs of personal items placed in Frida’s bathroom. These pieces were like the aftermath of an emotional hurricane, like a scrapbook for the wounded. Her crutches, her body straps, which supported her after many extensive surgeries, her hospital gown, her prosthetic leg: these are all remnants of a struggling Frida. Almost instantly, I was reminded of my own wartime relics. I’ve also kept my first prosthetic arm, my first wheelchair, and might even still have my first medical bracelet. Why did I choose to keep these things?

I guess, like Frida, to me they represent a journey: a visceral embrace of a moment in our lives when these objects, these sad contraptions, were all we had. They became our sole companions, the only true constant in an otherwise unpredictable swarm. The part of us that scowls at their presence is the very same part that knows they make life possible. And while we wish we didn’t have them, we know they make us better. I’m sure Frida would agree they become our tired, but lifelong friends – amigos del alma, friends of the soul.

While looking up at the photograph of Frida’s hospital gown, I was reminded of a recent zuleika hospizal gown 2trip to the hospital. Not too long ago, I had a treatment done as an outpatient, and as I walked into my spacious hospital room I couldn’t help but giggle at the sight of the ever too familiar medical garb. It’s a funny thing, really, how something can evoke a feeling of safety and care, all while simultaneously creating a cloud of uncertainty. Not many things in life can do that.

With a light draft grazing my backside, I tied the print gown behind me and relaxed against the plumpness of my pillows, waiting to start the procedure. I thought about the many hospital gowns I’ve seen over the years, and came to the sobering realization that I probably still had quite a few to see in this lifetime. Did Frida have that moment of reflection too? How far did she get before she tapped into that reality? Like Frida, I haven’t let these setbacks get the best of me, but those moments – while far and few in between – can still be quite numbing. You can imagine the depth of these thoughts for Frida, a woman that experienced over 30 surgeries, several miscarriages, and a leg amputation. Yet her spirit remained intact in her work.

As I stood in front of these photographs, holding back the tears and knot in my throat, I smiled. THIS is exactly what Frida’s work is meant to do. Her provocative nature doesn’t just tell the story of a woman because of her tragedies and flaws; it tells the story of a woman despite them. We’re welcomed to a world where pain is progress, where love is in abundance, no matter the size and constitution of the woman holding it. Her trove of medical aids is just a part of what made Frida the badass warrior that she was. My prosthetics of past and present have also allowed me to be where I am today. My wheelchair allows me to venture out effortlessly, and Michael Cane gives me the freedom of choice and continuity. While symbols of tragedy to most, to me they represent the good that is still inherent in a traumatic life experience.

Thank you, Frida, for reminding us that there is much beauty in frailty and that vulnerability is what allows us to hold on and let go at the same time.

Frida Kahlo, Beyond the Myth, will be in exhibition until June 3, 2018.

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It’s a Bonnie Life

“How do you say ‘pretty’ again?” she asked coyly.

“I think it’s ‘bonnie lass.’ You used to be one, remember?” he teased.

It’s the kind of brief, familial exchange you hear from a couple whose relationship has obviously stood the test of time. It’s this jovial, lighthearted banter between two people that makes you smile, even when you know you’re catching only a glimpse of that camaraderie.

On my recent tour of Inverness, Scotland, I had the pleasure of traveling with 16 other passengers. Jim and Brenda, a retired couple from Arizona, sat behind me; their cheeky interchange was a welcome insight into the world of marriage, parenthood, and simply growing old together. They teased, giggled, and nudged each other often, and I thought it was adorable. We chatted briefly: exchanged our backgrounds, name origins, and what we had been enjoying most about this three-day tour. “A three-hour tour…a three-hour tour,” Jim sang as he hummed to the theme song of Gilligan’s Island. We instantly got the reference and giggled.

While our interactions were brief, this couple still made an impression on me. After all, isn’t this what most people crave? This closeness that allows you to be exactly who you are? Filters and egg shells are replaced with a boundless “no holds barred” platform of honesty and comfort. Years of experience build up to a space where what you have left are unabashed recollections of life for two. I often wonder what that will be like for me.

I imagine a man also telling me I used to be a bonnie lass, as he gently helps me remove the shoe from my prosthetic leg. Or him cutting my meat into tiny squares, as we bicker over who left the bathroom light on. I imagine him pushing me down a boardwalk in Barcelona, the sun beaming on our tired faces. I imagine our very creative sex life – many nights of fun and splendor. The quiet times are filled with cozy evenings in the kitchen, as we try out the latest cauliflower recipe that food bloggers seem to swear by. We share a glass of wine, I realize I’ve burnt the chicken once again, and we make do, because having burnt chicken with cauliflower rice and wine is still what memories can be made of.

We binge-watch a few episodes of Friends (and agree they were in fact on a break), as I scold him for not taking out the trash; and the evening moon wanes as the smell of burnt chicken wafts through the windows. It’s a bonnie life.

 

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Get “Well” Soon

On a recent trip to Inverness, Scotland, we stopped by a magical place true to Scottish lore. Clootie Well, a well surrounded by trees and healthy foliage, was the ancient remnant of old Scottish tradition. It’s believed that pilgrims would once flock to this well in hopes of curing a disease or ailment. The pilgrims would dip a strip of cloth, or “cloot,” in the well or spring and hang the cloth on a nearby tree branch. The healing ritual ended with a prayer and good wishes to those in need (whether for the person hanging the cloth or a loved one).

clootie well

Now, I’m not much of a superstitious person myself, but something called out to me in that forest that cool September day. It was as if I could hear a collective sigh reverberating through the trees; a sigh of all those yearning to heal. It echoed with the voices and pleas of people who may be like me, who knew how much our energy and thoughts could travel to help a person’s soul, even if that hope was all we had to give. Clearly, these pilgrims felt the same way; I’m guessing many of them traveling from afar, and with limited resources. I’m reminded how far love and the power of “good” can travel when at your core, you know it’s the best you can do for yourself and someone you care for.

clootie well 2As I made my way through the forest and up the jagged stone steps, guided by my friend’s arm and our bubbly tour guide, I took it all in: this cloth version of a “get well soon” card display that carefully hung on trees and branches. The fine threads wavered in the breeze, and rags were wrapped around barks, like children embracing their mothers. There was a silent, unshakeable innocence and vulnerability that lingered in the air. As I silently placed my damp cloth on a small, slightly withered branch, I thought of my loved ones: the friends that are struggling, the friends that are sad, the friends that could do with that hopeful energy I so desperately needed myself before. Somehow, as if by magic, I felt that I set something in motion just by being present, by allowing my thoughts to be filled with nothing but hope.

So often we forget to simply ask how a person is feeling, how they’re doing, and more importantly, what we can do to make them a little better. Can we save the world on our own? No. Probably not. Can we save people from their own fate? No. Probably not. But can we make them feel better? Well, I’d sure like to think that we can try.

 

 

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How I Eventually Became a Soaring Eagle

While sorting through my bookcase one afternoon, I found this old story and thought it fit well with my hopes for 2017. To once again be that soaring eagle!

When I was in first grade we were separated into reading groups. Those that excelled were the soaring eagles, and those that were well on their way, but not quite there yet, were the leaping frogs. Then there were the learning turtles. They were on the very bottom of the totem-learning pole—fish bait for the over achievers and brainy kids. I was a learning turtle. I loved to read but I struggled, and like a turtle, I had a pace that qualified as “perpetually falling behind.” It would be a while before I could tackle, Are You There God? It’s Me, Margaret. I longed to be a soaring eagle. They were like an elite social group that only smarter, cooler kids could join. I so desperately wanted to identify with an animal that was an American trademark, and not one that had the athletic capacity of a paper cup.

 

Our teacher Mrs. Clone, a short, pudgy woman in her fifties, terrified us to our very core. Her raspy voice and tinted fingertips suggested she was a chain-smoker. Her Donald-Trump hair, haphazardly combed to the side, gave you the impression that she preferred an effortless life, one unconsumed by female frivolities. High heels and pencil skirts were foregone for sensible beige shoes and tweed pants. Mrs. Clone was practical and never minced her words. I remember an afternoon crying while I went through my workbook, erasing all the math problems I had so courageously decided to do on my own. “You won’t do something unless I tell you to,” she barked, as my classmates looked on in fear. Math homework never seemed so traumatic!

One December morning we were all ordered to the front of the class and formed a single line. I watched as, one by one, the students formed a row, our black and yellow plaid uniforms creating a menagerie of colors and print. The boys and girls meandered to the front over the sound of desks clamoring and seats being huddled to the sides. They twisted their elbows nervously; the girls tended to their locks, making sure their pleated skirts were tidy. The closer I got to the board, the stronger the smell of chalk, bananas, and cigarettes became.

Slowly, Mrs. Clone took out our reading book from a small metal drawer that clinked loudly when shut. She turned to her left where Jonathan stood meekly. Jonathan was a light-haired introvert who was a soaring eagle. What he lacked in confidence, he made up for in spelling. He glanced around the chalkboard probably wishing it would open up to a hidden vortex leading to anyplace but there. Mrs. Clone handed him the book and commanded, “I want you all to read this story one by one.” Jonathan nervously began to read, but before he could get to the second sentence, he was abruptly cut off. “Next!” Mrs. Clone shouted. The book was passed down the line, like a tasty Thanksgiving dish, only not as appetizing. After each child had read the same sentence, Mrs. Clone yelled, “Next!”

The students stood completely bewildered, questioning why they were all being dismissed so erratically. And then it dawned on me. I knew why Mrs. Clone was frustrated. Each student was forgetting to read the title before diving into the story. When it was finally my turn, a small red-head handed me the book, her eyes defeated. I took the book, swallowed hard, and began from the very top, expecting that husky voice to interrupt at any moment. But the words kept flowing and eventually I finished. I looked up, suddenly aware of the palpable tension. An audible “Good” escaped Mrs. Clone’s lips. She then motioned me with her index finger, and as I got close enough, she said something even more erratic and out of place. “After the Christmas holidays, you’re going to be a leaping frog.” I stared blankly, letting it all register.

That moment alone erased all the excruciating Math classes spent in humiliation, all the long hours tackling nouns and verbs, and all the moments of being intimidated by cigarette breath. My fears of the cursed turtle were replaced with new hope of someday getting to the top of that totem pole; of wanting more, of eventually being an eagle.

And a few months later…I was.

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London’s Batmobile

It only hit me just now how the black (and slightly dark grey) cabs that are synonymous with London culture are somehow like their very own unique version of the Batmobile…to me anyway. Why? I guess it’s because, to me, it embodies everything that is significant with the caped crusader’s armored vehicle. Like the Batmobile, London cabs have proven to be worthwhile companions and heroes time and time again, especially for the disabled community.

On a number of visits to London I’ve had the pleasure of riding in a London cab, and IMG_6712every time, I’ve been in awe of the service and accessibility behind it all. Imagine my surprise the first time I got into a hackney carriage, or as they are more commonly referred to, “black cabs.” At first contact, they appear spacious and compact, with a driver usually very keen to see how he can assist. As I was wondering how I’d get in and whether I’d need to fold the wheelchair first, the driver instantly pulled out a small metal ramp from the interior of the side and swiftly wheeled me inside the cab, all before you could say, “holy buckets batman!”. “Hang on to the yellow bar on the side there, love,” he gingerly advised, as my friend sat down on the seat adjacent to me.

I remember thinking how incredibly easy and comforting that experience was, and every time I remember it, I smile. I smile because I’m grateful that somehow, someone took the moment to think about this…to really think about the consumer (and all our different needs). As we passed by the streets of London that night in our “carriage” I was reminded of just how thoughtful and accommodating the city of London is overall towards the disabled community. Not only were they accommodating, but they radiated a sense of empathy and patience that so far have been unparalleled in other cities.

Every public building from theaters to restaurants to museums and bars: the majority of them offer an accessible entrance(whether from main or side doors). Those that don’t, are quick to offer an alternative with portable metal or plastic ramps that can just as easily get the job done. Comfort and ease are clearly at the top of their list and I was always thankful for that.  Accessible cabs were just the icing on the cake that made for a fun and spontaneous tour of the city. I highly recommend it for those traveling with strollers or wheelchairs. These cabs are pretty much on every corner throughout the city, but can also be booked online or by telephone.  If traveling with a wheelchair user, they seat 3 people comfortably.

So the next time you’re in London, and looking for a heroic mode of transportation with a little bit of class, try the Batmob–er.. I mean the black cabs. Make the trip just a little more easy.  🙂

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DeFY. New York talks to a fellow New Yorker

In March, Scott Fredrick, a friend from LIU (CW Post campus), contacted me and asked whether he could ask me some questions relating to my accident and where my journey has taken me over the years. He wanted to include the interview in his blog, DeFY New York; a blog catering to the urban world of sneakers, fashion, and music.  Naturally, I said yes, and after a few email exchanges, here’s what he came up with.

DeFY New York Interview

Thanks Scott for supporting my cause and for sharing my journey with others!

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